We are seeking an experienced Fundraising Consultant to develop and execute a diversified fundraising program dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra-rare disease affecting approximately 350 known individuals globally.
We aim to raise funds to support scientific research, advance treatments and a cure, provide resources to affected families, and strengthen the global Barth syndrome community.
The role combines strategic planning with hands-on execution across individual, corporate, institutional, government, and digital fundraising channels.
Requirements
...following benefits for this position, subject to applicable eligibility requirements: ~ Medical, dental, and vision insurance ~ Paid vacation, sick, holiday, and parental bonding leave ~401(k) retirement plan ~ Long-term and short-term disability insurance ~...
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